Friday, April 30, 2010

Day 684 - April 30 - Blog Conversion in Progress

It's Friday morning, and the last 24 hours have been a scramble to get a functioning blog in place to replace the Blogger.com functionality that we relied so heavily on for ConnorWatch.

Many modifications have been made to the blog portion of the website, and when you visit the site, though the menus are the same, the blog has changed dramatically. Many of the old functions are yet to be added, but commenting is available, as well as a few new features. Many of the new items will required some explaining, but feel free to explore and click away to your hearts content.

There is a new menu item for the Blogger Archive, which is where all the old posts reside until we manage to get them transferred into the new system.

What is not yet working are email and feedburner updates - still have a ways to go on those, but if you rely on email or Feedburner notifications of new posts, recognize that you will no longer receive updates, at least until i can add that functionality.

I will continue to work over the next few weeks to restore the missing functions, but for now, visit the site and see what the new blog looks like.

Brad


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Thursday, April 29, 2010

Day 683 - April 29 - Blog Changes Afoot!

Be prepared for a few uncertain days ahead with the ConnorWatch blog. The blog is about to undergo a major transformation, and that may affect you. Your access to the blog may be intermittent, irregular, or completely disrupted! To be honest, we just don't know at this point, but we do know that after midnight Friday, the 30th of April, the blog will no longer be hosted on Blogger.com.

Google's acquistition of Blogger has resulted in changes, and Blogger will no longer support imbedding the blogs in websites like ConnorWatch. Consequently, to continue with ConnorWatch the way you have come to expect it, we are having to add a full blogging software package to ConnorWatch. Apart from all the technical details, installation and testing, and porting over of all the existing blog archives, there are many details that will require our attention and may result in you not experiencing the ConnorWatch blog the way you are used to.

If you get the blog by email, or use a Feedburner feed, expect that service to be interrupted, at least for a few days, while we sort out all the new problems.

You will not have access to the archives of old posts until they are transferred over to the new format, which may take some time.

In a nutshell, we are asking for you to be patient and understanding as we work our way through this transition.

All other ConnorWatch website functions will remain operational, so you can refer to the Happenings page for updates and notifications if the blog is not available.




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Monday, April 26, 2010

Day 680 - April 26 - We made it!


Well, we did it. We successfully had a fantastic day at a race track two hours away from the house. Not only that, but we successfully overcame some difficulties while doing so, and still had a great time together.

We left the house at 8 AM, which, while that's an hour after our target departure, is still three or four hours earlier than we've ever gotten out of the house before. Fortunately, we are learning how successful we usually are at getting out of the house and had built the delay into the plan, so we weren't too far behind schedule. We stopped after about an hour on the road to shift Connor's position (and pick up a dozen hot-off-the-conveyor-belt-and-still-dripping-from-the-Wonderful-Waterfall-of-Glaze Krispy Kremes, something Connor hasn't had in over two years), An hour later, with another "sort out some difficulties" stop behind us and thoroughly sick of Krispy Kremes (at least for now), we arrived at the track. Our friend Charles (that's him in the photo with us above) had added us to his racer's list, so we not only got in free but were able to drive into the paddocks and park next to his trailer, bikes and equipment.


We were able to visit with him and get some photos of (what I'm calling) the ConnorWatch Racing Team's Suzuki GSXR-1000 in it's striking yellow paint, and a couple of other friends of ours motorcycled in as well. We had a great time visiting with them all before it was time to go watch Charles race.


We found a good spot up at the top of the Grandstand where Connor could see a lot of the action, and really enjoyed the day. I should toss out a big "thank you" to Charles for making us so welcome, and for deciding he wanted to show his support for Connor on the side of his bike. Also, we greatly enjoyed seeing our friends Jeff and Chuck (and Chuck's son Josh, too) and are thankful they undertook the ride out to Sonoma to join us there.



Also, I want to let y'all know how much we appreciate your prayers of support. Because of y'all, the mechanics quickly identified the problem with the van's lift on Friday and solved it within half an hour (and at a not-too-terrible price), and so we were able to undertake this road trip. And because of your prayers, it was so successful and enjoyable. Connor not only enjoyed himself immensely, but is looking forward to doing it again with Joélle and Alan in a month or two. So thanks greatly for remaining faithful as you journey with us here.

God bless,

Eric



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Friday, April 23, 2010

Day 677 - April 23 - More Mechanical Grief

Well, I took the van into the shop Wednesday to get the lift adjusted - it was out of whack and wasn't staying level when it raised and lowered, so I spent a couple of hours having them fine-tune the thing. All's good, right? Wrong. The first time Connor tries to use it, it won't work right. Now it's stopping in mid-cycle, not lowering all the way, or lowering by itself, including trying to unfold while it's stored inside the van.

Of course, this upcoming weekend is filled with an exciting activity that Connor's been looking forward to, and which we must have the van to get to, so I guess it fits the pattern that once again, a mechanical failure is trying to keep him from doing it. In this case, a friend of mine is racing his motorcycle a couple of hours from here, and we have planned to attend. The fellow has gotten Connor access to pit lane and the track, and runs Connor's website on the side of his bike -



- so we really want to attend. But - if we can't get this lift issue straightened out today, it may keep us from trying it.

I'd appreciate your prayers, not only that this will get taken care of easily, but also that the frustration of all these breakdowns won't overwhelm us. It is so discouraging to have to cancel what few plans we get to make, and it breaks my heart to see the disappointment on his face.

Eric/Dad



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Sunday, April 18, 2010

Day 672 - April 18 - Melody and Harmony

I'm a musician at heart. While I haven't picked up an instrument in a decade or two, and I haven't joined a choir lately, I adore music. I'm not in the same class as Cherié is with her voice, but I can sing a bit better than is required for solos in the shower. I was a Music major in college for one year during my "take ship to Tarshish" stage, and music continues to move me when nothing else does.

On the way home from work the other day, I was listening to some of the pieces from Handel's "Messiah". I know that's a bit strange, particularly coming from someone who also has a fondness for more contemporary artists like BBVD or ZZ Top, but I've always had a fairly eclectic taste for music, and I am particularly moved by many of the classical pieces. Anyway, back to the "Messiah". If you're aware of it at all, you probably associate it with Christmas, since that's usually when it's performed. But you may not be aware of some of the things about this work. First, the entire oratorio lasts many, many hours and tells the entire story of Christ, from the prophecies concerning His birth, all the way through His suffering, crucifixion, and resurrection, all the way to His second coming and rule. The excerpts we sing at Christmas take about two and a half hours, and represent Part One (of three parts) of the whole.

Second, Handel wrote the entire oratorio, start to finish, in 24 days.

Third, every word, every phrase, every sentence in the oratorio is a direct quote from the Bible.

Finally, you might not know that Handel often utilized a technique in his music called "word-painting", which is making the music reflect what the words say. A simple version would be using lower notes when singing about valleys, and higher notes when singing about mountains, as he did in the piece entitled "Every Valley".

So why am I telling you all this stuff about "Messiah"? Ah, bear with me. As I was driving home the other day, I was listening over and over to a piece entitled "All we like sheep have gone astray", which uses the words from Isaiah 53:6. I would really like you to click on this link and listen to the song. It's written in four parts, and you'll see from the score that the vocal parts are arranged to go "every one to his own way", just like the words say. And if you're not moved by the resolution to the piece in the last sentence, I'll eat my hat.

So, basically I'm in tears as I drive home, listening to this piece of art, and I start thinking about how each of us is living a part in a great musical masterpiece. Our lives - not just mine, or Connor's, but every one of our lives, including yours - is but one line in a musical score written by God for His glory. A score greater than anything Handel ever wrote. A score that stretches across the centuries, and of which each one of us get to see only a small part when it's our turn on the stage. And in a way, the occurrences in our lives, and how we live them, is the musical line we sing as we take part in this massive choir of praise to God. In that score, there are high parts for the sopranos. There are low parts for the baritones. There are parts where different voices are featured as they sing their part of His story. And the score weaves itself across the globe and through time itself as it draws to its climax and conclusion.

And as a participant in this choir, you sing the part that's given to you. Perhaps like me, you sing baritone, or you sing soprano or alto or tenor. But even within your range, you're called to sing both high and low notes. I like to sing the high notes written for baritones, because my lower register isn't that strong. But if the score is written to sing the lower notes, that's what I have to sing.

Now, two things happen when I sing the lower notes. One, I get better at singing lower notes, because my ability is stretched and I practice it more often. And the other thing that happens is that as I practice and get better in this lower register, the piece of music gets better too.

Each of us sings a part in this choir. Sometimes we're each blessed to sing the high points, those notes at the top of the scale where the melody line flits along like a bird, joyfully ringing God's praise. And at other times we must sing the low, low notes - those notes that are dark, and deep, and difficult to sing, and that hurt your throat. But they're both necessary to complete the oratorio.

When you are called to sing the low notes, how will you sing? Will you sing the lows with as much fervor and skill as you sing the highs? Will your voice ring from the depths as you fulfill your part of this mighty harmony of praise to God? Or will you quit singing, or complain to your neighbor about how hard it is and how you don't like to sing the low notes, and remove your voice from the chorus? I'm trying to do more of the first and less of the second. Will you join me?

Eric




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Wednesday, April 14, 2010

Day 668 - April 14 - It works!

Well, after nearly a month of trying, it appears that the ventilator power problem has been figured out and corrected. Owing primarily to my good friend Stan, last night we discovered an intermittent fault in the fuse holder, of all places. The fuse holder was randomly deciding to allow only a fraction of the power through the circuit whenever it got the urge. No rhyme or reason, just a completely random occurrence. Once we found that, it was a only a matter of replacing the parts. Thirty minutes, one fuse and one fuse holder later, we were on our way. Connor was able to go the whole day without plugging into the wall today, and with no alarms and power losses. So to celebrate the three of us went to see Alice in Wonderland this evening, and the vent and all the connections appear to be fixed at last. So keep an eye out for a handsome redhead rolling around town again - the boy is anxious to get out of the house after 5-6 weeks being holed up.

That's all a big answer to prayer, by the way!

A great big thanks to Chief Handyman and Retired Old Guy Stan for patiently helping us figure this stuff out!

Thanks also to the many of you who either offered your services or offered someone else's! We really appreciate it!

Eric





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Tuesday, April 13, 2010

Day 667 - April 13 - My Evolution

I hope you don't mind - I have finished another poem, which I hope you find worthwhile. It's entitled "My Evolution".

I envisioned, amidst gloried distress,
a creature - small, and nasty, and full of hate
lying in its own vile and horrid mess;
wondering what had brought it to this state.

I envisioned, amidst gloried pain,
this splintered, devious, broken thing,
striving with passioned pangs to attain
an end to all its suffering.

I envisioned, amidst gloried grief,
as it writhed under burdens of painéd weight,
grasping for grasp on the forces that forced its brief,
ungainly, unwieldy form into this fetid state.

I envisioned, amidst gloried horror,
this thing, as coercion bent it nigh,
and in so doing forced its gaze to soar -
wondering how? And why? And...why?

I envisioned, amidst gloried torment,
this myopic being begin, beyond its strife,
to perceive a Someone whose intent
so distinctly was different from its own wretched life.

I envisioned, amidst gloried fears,
through pressure, and strain, and tension, and pain;
by hurt, and burn, and tearing, and tears,
the creation this Someone in His creature has lain.

I see, amidst gloried awe,
the first halting steps of this thing;
no longer what it was, it totters toward the One I saw;
toward the Image it is becoming.

I cannot see, amidst gloried glory,
what next lies in the fating
as this creature that is me, entwined in His story,
steps closer to He who is waiting.

Eric





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Monday, April 12, 2010

Day 666 - April 12 - It didn't work

Well, the vent's still acting up, so Connor is still tethered to the house. Of course, it's raining cats and dogs as I speak, so we probably wouldn't have gone out anyway, but it's the thought that we can't figure this thing out that's oppressive. We've replaced the ventilator itself, the battery (which was tested with a load on it on Saturday), and the connecting cable, and we've built a new wiring harness. That's the entire system, and it still isn't working right. Anybody out there understand soldering and wiring for electronics and electrical systems? The wiring harness replacement is the weakest link in the "we replaced everything" chain - my mechanical skills aren't the best - but when you've done everything you can think of and it still doesn't work, call in an expert. Any experts out there?

The three of us did manage to get out for a few minutes on Saturday before the rain hit. We took a drive up to a lake nearby and had a short picnic together, and it gave Connor a chance to see something beside the inside of the house. He really enjoyed being outdoors for a few minutes, even though the wind chill made it pretty cold. He's always been an outdoors nut, so he had a good time seeing turkey and other birds, as well as trying to spot deer and wild pigs as we drove along.

This week, in addition to your prayers for Connor I would ask that you add Cherié and I to your prayer list if you can find room for another request. The stresses that have been placed on our marriage are difficult to manage, and we need God's help to walk this walk.

Thank you.

Eric





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Saturday, April 10, 2010

Day 664 - April 10 - Pleas

The other night Cherié was praying with us, and she was asking simply that we would be able to figure out what is keeping Connor's ventilator from working correctly so he would be able to get out of the house again. As I think I mentioned before, the vent on his chair isn't drawing power from the external battery correctly, meaning that unless it's plugged into a wall, there is only about one hour of battery life in the vent - not enough to get away from the power supply. So, since this began very shortly after we got the van fixed a few weeks ago, Connor has effectively been trapped in the house for over a month now, and everybody's going a bit stir crazy. Last night I replaced the last piece of the equipment involved - if this doesn't fix it, I have no idea where to turn next - and we were praying about it together. As we prayed, I heard the weeping in Cherié's voice as she poured her heart out to God over her son and his needs. And I thought "Lord, do You hear the anguish and heartache and pain in these words she speaks? These are cries for Your mercy and intervention - not just requests, but pleas. Do You hear them?"

It struck me then how much everything in our life is colored by this situation. It pervades every aspect of our lives and relationships. This isn't Connor's fault - it's God's doing - and yet there's no denying that our existence is centered around dealing with the ramifications of a day in June 2008. And again the only hope of change we have is to continue to take the boy's healing before a mighty and compassionate God.

So that's what we continue to do. Please continue to join with us in praying and trusting God for Connor's healing and complete restoration. We're tired, we want a change, and we covet your prayers.

Eric





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Tuesday, April 6, 2010

Day 660 - April 6 - Dry Bones

I apologize for the infrequent frequency of the blog these days. I'm fighting three things here - first, this new schedule is wreaking havoc with my routine; when you work at different times every day, it makes it fairly difficult to work out a schedule you can stick to consistently. Second, I have no real insight to offer you about anything lately, which makes me question whether I should even bother putting something up here - if there's nothing of value to offer, why bother offering anything, you know? And thirdly, there's not much to tell here on the home front.

Of course, as soon as I typed that I remembered that I'm supposed to tell y'all how pleased and excited we are for May to be approaching (which puts the lie to at least the third item in my list above). Next month, Joélle and her husband Alan are graduating from Moody Bible Institute in Chicago! Apart from the fact that this is pretty cool news and we're immensely proud of them for the accomplishment, they're moving back to Morgan Hill right afterward! They've arranged for a place to live which is about 10 minutes away from the house, so they're going to be close by again. All of us are very pleased! Additionally, Joélle wants to come work for Connor as a caregiver, which will a) look good on her resumé, b) help Cherié out immensely, c) help them with their finances, and d) give Connor and Joélle (and the rest of us, too) time together again. So we're seeing that as a win/win(win/win) situation!

You can be praying for them as well as they prepare to move out to California - especially that Alan will obtain a job sufficient to provide for them and which will allow him to continue his education. Both of them will earn Bachelor of Arts degrees in Pre-Counseling and Biblical Studies this May, and Alan is planning on going on to get his Masters in Psychology as well. He's got some prospects lined up, so please be praying that they'll be guided to the right job for them.

Finally, let me give you the lyrics to a song that's been in my head these past few days. Connor gave them to me, and they're pretty significant to both of us. They're the bridge from a song by Campaign called "Running after You" -

Give us strength to follow when the road gets narrow;
We will run, Lord, we will run.
Give us perseverance, let us not grow weary,
We will run, we will run.

In this race, we must remember - Jesus is the goal.


A cry of my heart...

Eric





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Sunday, April 4, 2010

Day 658 - April 4 - Easter Morning

He is risen!

I started this morning with a song in my heart, the chorus of what's probably my favorite Easter hymn...

Up from the grave He arose, with a mighty triumph o'er His foes!
He arose a victor from the dark domain,
and He lives forever with His saints to reign.
He arose! He arose! Hallelujah, Christ arose!


What a great song with which to remember Christ's resurrection!

So, last Thursday was a day of fasting and prayer for us - the "doing without" helped remind us to pray, and pray we did. I pray that God hears the cries of His people and moves with power, and we're excited to see what He will do in and through us as we go forward.

Speaking of going forward, we're not doing much going anywhere right now. In fact, we're not even going to make it to church this morning, owing to an electrical failure on Connor's chair. The chair itself works fine, but the ventilator on the chair is intermittently failing to draw power from the external battery. It's not life-threatening if that happens - the vent has a one-hour emergency backup battery built into it - but if it this failure happens alarms start going off, every head in the place turns around and stares at Connor, and we have to drop everything and get onto shore power as quickly as possible. So, once again, Connor is tied to the house until a technical problem is fixed. Perhaps not quite as closely as when the van was broken, but he still feels quite limited with these problems going on.

You could be praying for us and for him in this. I've replaced or rebuilt every part of the charging system, and it's still happening - which I guess means the fault is in the vent itself. That's next in our quest for resolution starting tomorrow, so please be praying that the ventilator provider will be willing to work with us to get this straightened out. This will make the second ventilator in as many weeks that we've asked them to replace. I'm sure they won't be too happy about that...

Apart from these difficulties, Connor is doing well. The tests he did a few weeks ago at the hospital showed some problems in his lungs, but so far the easy fix (that the pulmonologist recommended we try first) seems to be helping, and Connor is staying saturated with O2 at a higher level and his lungs seem clearer to us laymen, at least. So that's an answer to prayer, and we thank you for lifting him up.

Finally, there's an administrative issue I want to bring up, and to do so I need to explain a bit about how this blog works. When I write these blog posts, I don't do it on the ConnorWatch website. The blog, which if you remember began before we had a ConnorWatch website, is hosted by a different website called Blogger. Blogger has all the software tools necessary to make the blog, and that's where we set the thing up when we first started to blog about Connor's condition back in the summer of 2008. When we stood up the ConnorWatch site, we simply ported the blog data into the website frame, which is why "the blog" is in a separate little window of its own inside the bigger ConnorWatch page. The software that is running the ConnorWatch site itself can run a blog, which we're doing over on the "Happenings" page, if you want to see what that would look like.

Anyway, Blogger has advised us that they're no longer going to support FTP blogs (that's the kind of blog this one is) effective May 1, 2010. So we're in the middle of trying to find the right course of action to do two things - keep the blog going on the ConnorWatch site as seamlessly as possible, with as few changes to our readers as possible; and to ensure that we keep all the history and archive of the CW journey intact and available to everyone who wants it. It's easy enough to just start blogging on the site itself, but we feel it's very important to keep all of our history together. Please be praying about this - first, that Big Brother Brad will be able to resolve all the technical magic necessary to figure this stuff out and implement it, and second, that there would be as few headaches for everyone as possible during this next transition. We want it to be invisible to you if it's at all possible, so Brad is working feverishly to find a solution that will allow all those things to happen.

We'll keep you posted as we get closer to implementation, but I just thought you should know what's coming.

Thanks so much for your continued presence with us. Now go and celebrate Christ's resurrection from the dead!

Eric





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