Day 658 - April 4 - Easter Morning
He is risen!
I started this morning with a song in my heart, the chorus of what's probably my favorite Easter hymn...
Up from the grave He arose, with a mighty triumph o'er His foes!
He arose a victor from the dark domain,
and He lives forever with His saints to reign.
He arose! He arose! Hallelujah, Christ arose!
What a great song with which to remember Christ's resurrection!
So, last Thursday was a day of fasting and prayer for us - the "doing without" helped remind us to pray, and pray we did. I pray that God hears the cries of His people and moves with power, and we're excited to see what He will do in and through us as we go forward.
Speaking of going forward, we're not doing much going anywhere right now. In fact, we're not even going to make it to church this morning, owing to an electrical failure on Connor's chair. The chair itself works fine, but the ventilator on the chair is intermittently failing to draw power from the external battery. It's not life-threatening if that happens - the vent has a one-hour emergency backup battery built into it - but if it this failure happens alarms start going off, every head in the place turns around and stares at Connor, and we have to drop everything and get onto shore power as quickly as possible. So, once again, Connor is tied to the house until a technical problem is fixed. Perhaps not quite as closely as when the van was broken, but he still feels quite limited with these problems going on.
You could be praying for us and for him in this. I've replaced or rebuilt every part of the charging system, and it's still happening - which I guess means the fault is in the vent itself. That's next in our quest for resolution starting tomorrow, so please be praying that the ventilator provider will be willing to work with us to get this straightened out. This will make the second ventilator in as many weeks that we've asked them to replace. I'm sure they won't be too happy about that...
Apart from these difficulties, Connor is doing well. The tests he did a few weeks ago at the hospital showed some problems in his lungs, but so far the easy fix (that the pulmonologist recommended we try first) seems to be helping, and Connor is staying saturated with O2 at a higher level and his lungs seem clearer to us laymen, at least. So that's an answer to prayer, and we thank you for lifting him up.
Finally, there's an administrative issue I want to bring up, and to do so I need to explain a bit about how this blog works. When I write these blog posts, I don't do it on the ConnorWatch website. The blog, which if you remember began before we had a ConnorWatch website, is hosted by a different website called Blogger. Blogger has all the software tools necessary to make the blog, and that's where we set the thing up when we first started to blog about Connor's condition back in the summer of 2008. When we stood up the ConnorWatch site, we simply ported the blog data into the website frame, which is why "the blog" is in a separate little window of its own inside the bigger ConnorWatch page. The software that is running the ConnorWatch site itself can run a blog, which we're doing over on the "Happenings" page, if you want to see what that would look like.
Anyway, Blogger has advised us that they're no longer going to support FTP blogs (that's the kind of blog this one is) effective May 1, 2010. So we're in the middle of trying to find the right course of action to do two things - keep the blog going on the ConnorWatch site as seamlessly as possible, with as few changes to our readers as possible; and to ensure that we keep all the history and archive of the CW journey intact and available to everyone who wants it. It's easy enough to just start blogging on the site itself, but we feel it's very important to keep all of our history together. Please be praying about this - first, that Big Brother Brad will be able to resolve all the technical magic necessary to figure this stuff out and implement it, and second, that there would be as few headaches for everyone as possible during this next transition. We want it to be invisible to you if it's at all possible, so Brad is working feverishly to find a solution that will allow all those things to happen.
We'll keep you posted as we get closer to implementation, but I just thought you should know what's coming.
Thanks so much for your continued presence with us. Now go and celebrate Christ's resurrection from the dead!
Eric
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