Day 628 - March 5 - Bits and Pieces
A bunch of short items I've been meaning to mention but haven't blogged about yet - I'm gonna number them for later reference. I hope you don't mind...
1) I want to take a second to say how extraordinarily proud of my daughter I am. She and her husband are finishing up their Bachelor's degrees at Moody Bible Institute in Chicago this Spring - their hands are overflowing with work, and school, and studying, and getting ready to move their household back to California in May, and trying to find jobs out here, and a million other things. And she is is sensitive, intelligent, and compassionate enough to recognize that she may have impacted someone in the wrong way, and courageous enough to do something about it. If you didn't see her comment on the last post, all I can say is "what she said". Way to go, JoƩlle! Your Pops is so proud of you!
2) I'm pretty proud of Connor this week as well. He handled himself so well through two different doctor's sessions - so much better than anybody could have asked for. On Tuesday he saw his SCI doctor, which was a good visit all in all. Amongst other things, she's going to be ordering some physical therapy for him, assuming we can find a therapist that is covered by our insurance and will work with someone on a ventilator. There's a prayer request for you!
She was also frankly a bit astonished when she examined him. After looking at the state of his muscles, his lack of atrophy, and his breathing, she shook her head and said that Connor's body is not following the path for SCI patients - he is limber, his muscles are toned, they aren't atrophying, and he doesn't breathe or talk as if he were on a vent. She has decided to get the original MRIs from Fresno (she's actually been trying but they haven't been willing to send them) and order some new ones because, in her words "there may be something that's causing the nerves to act this way (in these unusual fashions) and we need to find out what it is". I am praying that there will be some clear, physical cause to Connor's situation that can be addressed, and that when taken care of will remove his paralysis. My God is a mighty God - He miraculously repaired Connor's arteries back in Fresno - and He can do this. Pray with me...
3) Connor saw his pulmonologist yesterday because of trouble with his lungs. He seems to be having some difficulty staying saturated with O2, and so the doc wants to do some X-rays and stuff to see what's going on in that department. Please be praying for that situation as well - even with a machine breathing for you, that whole oxygen thing is still kinda important...
4) If you only check the blog occasionally and spend all your time on Facebook instead, the ConnorWatch Community has a presence there as well. Search the Pages for "ConnorWatch" and you'll find us. So far, it's been a sort of annex to this site. It'll be interesting to see what becomes of it!
5) We're in the market to hire a trained massage therapist to work with the boy a couple of times a week here at the house. If you're local, and either are or know of an experience massage therapist looking for some more work, we want to talk to you! Contact me directly through the "Contact Us" page on the site, which can be reached from the bottom of each site page.
OK, enough. I know that as soon as I stop blogging, I'll think of something else I should have posted, but it's time to get ready for work. Thank y'all for sticking with us. Continue to trust God and wait with us!
Eric
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3 Comments:
One thing you did forget is a prayer request...
Ian and Johnna Utile, David and Kerri Duerr's daughter, needs our prayers. They lost their baby this week. They are involved in a wonderful ministry called, Take No GLory....
Here is a clip from their website.
Mourning and Celebrating Life
Yesterday was an emotion packed day for us. As we (Ian and Johnna Utile) celebrated our son Malakye's 1st birthday, we also mourned because we miscarried our second child. We were excited to meet this baby, who was due August 30th, but we will have to wait until Heaven to see our little one...
Please lift this family up in prayer... Their music has ministered to so many people, and our whole family during this hard time in our lives. I will leave a link here to their website. Please go visit it.
Thank you for uniting in prayer for Johnna and her family.
http://www.takenoglory.com/
Love in Christ,
Cherie' ps. We love you Duerr family!!!
Dear Cherie and Eric I am a Licenced Massage therapist and have beed for over 20 years specializing in muscle attrophy and scartissue reduction I can give references for you if you would like I worked for several years on geritriac patients and always pray for my clients God does the work I'm just the tool you can call me at 408 706-1355 or email me if it is easier mv123yesitsme@yahoo.com thank you for your time love Pam
What good news from the SCI specialist -- a true answer to prayer, I think -- and you didn't go half-way around the globe :) I hope that the pulmonologist also can figure out what's going on. I do think that PT and Massage would be a good addition to Connor's regimen and perhaps be very helpful. I pray that the right one is sent your way by our Father, who knows all things and blesses us in ways that we do not anticipate. I know that your family will be a blessing to whomever ends up helping you!
Love and prayers,
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