Day 409 - July 28 - A Full Day
Well, we all survived the doctor's visit. I guess we'd all sum it up as "not as bad as we thought it was going to be". We were with her for about an hour, discussing data needed to get CCS to take care of the second vent (yes, I too thought this had been resolved). We also reviewed and modified some of our vent-weaning protocols. The doctor calls Connor an anomaly - his charts say one thing but clinically he's another. For instance, a true C1 complete injury, which is how they classify the boy, would code immediately - they have no ability to breathe. Christopher Reeve was a true C1 complete. If you ever saw him, you will remember that he also couldn't lift his head. Connor holds his head upright all the time, and to demonstrate his breathing he went off the vent for six minutes while the doctor watched. She finally stopped him - he was ready to continue. So he doesn't really fit any of the classifications, which causes all the confusion between people who deal with him (like the doctor) and people who count beans and just see numbers on paper. They think he's one way because of what the records say, but he's not like that. So a lot of the effort goes to just straightening out misunderstandings.
After the doc's visit we did come back home, but Connor arranged for some friends to go to the movies during the afternoon. Cherie and I napped. Then in the evening, while some people we went to church with years ago (and who now live in Japan) were here praying with us, Connor and Josh announced their plans to go to another friend's house for dinner. We quickly seized on the opportunity for a short dinner date, and then (you guessed it) came back home and slept until the boys came home.
So, a full day for the boy, which he needed. Thank you for your continued prayers in that regard for him and for us!
E.
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posted by Eric Williamson @ 6:50 AM
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4 Comments:
It is nice to hear that you all had a nice, relaxing day. Still praying for you!
Yeah, I remember telling the kids Dad and I are going to take a nap! Whole lot of napping going on in one afternoon and evening guys. ;-)
Glad there are some things that don't change. Some normalities.
Still expecting GREAT things from our Father on your behalf, for His Glory.
Love,
Renée
Lebanon, TN
Eric,
I know it will all get straightened out. Thank the Lord for your doctor!
I'm glad for your full day of activtiy or lack of it! Sometimes that is what a person needs.
Praise God for a good dr. visit--I knew she wasn't going to give you all that much of "the look" except the one of perplexities b/c Connor isn't a C-1 like they said he was. Continue to pray for more miracles in his life and glad that you had time to visit w/ friends and nap :)
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