Day 386 - July 6 - Independence Day
Well, it's been a busy weekend. We celebrated the Fourth of July in style, managing (with the help of our friends) to get to the parade just before it started. We were so close to being late that when we pulled out onto the parade route in order to drive the 100 feet necessary to get to the parking spot they'd reserved for us, we were actually between the front police car leading the procession and the motor officers behind him! I guess I should have been waving my hand out the window... 8-)
Connor and Josh then spent some time at a friend's house for a couple of hours, but Connor wasn't feeling well so they came back home. We got the boy into bed for a couple of hours and he felt a lot better, so we ventured out to see the fireworks with some other friends.
All that excursioning (is that a word?) wore everybody out, and we spent the rest of the weekend taking it easy. Connor manages to still sit up until late, goofing off on his computer with his friends - CheriƩ and I, on the other hand, stagger off and collapse into bed. Fortunately, we may have figured out one of the problems that's been giving us grief over the last week.
You may remember that Connor has been having trouble staying saturated with O2 at night. He's fine sitting up during the day, but lying down at night has been giving him grief. We've been trying to figure out why, since he's been doing so well for all these months, and we've been concerned about the damage done to his lungs by pneumonia, and things like that. Well, last night about 3 AM CheriƩ discovered a small leak in one of the components of the vent tubing. We replaced that, and what do you know? His sats went right back up to where they're supposed to be. Makes me want to do my Homer Simpson impression - "Doh!" It's strange how our minds jump right to the more serious and complicated answers instead of thinking of all the simpler, more plausible explanations first...
Thanks for continuing to journey with us here. It means so much to us that you're here!
Eric
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4 Comments:
So nice to hear that you had a great weekend and that you were able to figure out what was causing him problems at night. So thankful it was a "small" thing.
Have a good week!
I have followed Connor's journey since day one. I am now following another young man, Jacob, on his journey. He was electrocuted, and is in Valley Med burn unit being treated, surgeries, etc. His dad, Tom Kirkendall (Jacob's Daddy) reminds me of you, Eric in the early days. Here is their blog, if you want to pray along. I have two wonderful young men now to pray for! http://journeythroughfire.blogspot.com/
Vicki,
Thanks for being here and for following Jacob's story as well. We heard of Jacob last week and I've connected a bit with his brother, Robbie. If you check the Forum pages in the site, you'll find a category called "Opportunities to Serve" - a link to Jacob's page is there, as well as to two other young folks in similar situations. Hopefully everyone will find ways to help these other families as much as you've blessed ours!
E.
GREAT to hear that you figured out the mechanics of the problem -- rather than there being something new wrong w/ Connor's lungs. Hang in there! Cheryl
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