Day 375 - June 25 - Ventilator Clarifications

There has been a few inquiries regarding Connor and the vent. Let me start by saying that Connor is still dependent on a ventilator but with work and time, and of course our God, he will be free of this anchor. Eric's last post regarding a disconnected hose was not that of the ventilator but rather that of a secondary optional hose that delivers extra oxygen to the mix. Connor is currently breathing regular room air just as you or I do. The vent is acting as his diaphragm, bringing room air into and out of his lungs. As you all know, Connor has been showing great signs of a now functioning diaphragm, though weak due to a lack of use, it is working. Praise God!! So like any other muscle in our bodies, this muscle needs some time to become stronger. That means regular work outs.... i.e. breathing apart from the vent, and slowly building up to full days off the vent.

So when Eric spoke/wrote about a vent hose being disconnected, he in no way meant one of Connor's air supply lines. It was only an extra line we can use to supplement O2 when necessary. The last few nights have been rough. We believe Connor has a small cold, but is showing signs of already doing better, as was witnessed by a WONDERFUL good nights sleep last night!! Praise God and thanks for the prayers.

Anyway, I really hope this clears up some confusions regarding the ventilator. Connor did not spend the night off of the ventilator. However, Connor will be free of this life supporting system one day. From the beginning, Connor has told us that he would be free of the vent. There is no doubt in our minds that he is correct.

Keep watching and keep praying... this generation needs to see a real miracle. I believe Connor is that miracle.

Love you all,

Cherie'

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