Day 339 - May 21 - The Latest
Connor took a down day yesterday and stayed in bed, visiting with Joelle and Josh, using the computer and watching movies. Unfortunately, yesterday we also got to deal with our first equipment failure - his alternating pressure point mattress failed, meaning that he had to be turned manually on a regular basis throughout the day. This was just another task added to all the rest, but a vitally important one. The mattress is what helps prevent pressure sores when he's lying down, and without we have to revert to the old-fashioned method.
Fortunately, we got it partially working by nightfall and that got us through the night, and the equipment supplier is bringing another one by today, so we'll be back in business. It looks like we managed it fine, without any ill effects for the boy.
Today the girls are running around doing wedding stuff and having some time together, which is good for them, while Connor and Josh chill at home. I get to work - yippee! But we'll all be back for dinner. One thing you can say about this whole thing is that we sure get a lot more family time together...
If you didn't catch it from yesterday's post, I've been feeling a bit - well, I guess "dissatisfied" would about cover it, although that doesn't sound so good when I write it down - with our current status; questioning purpose and timeline a lot even though I know in my head it doesn't do any good. But I just got an email from a friend who said that the information about Connor's toes wiggling reminded him of Elijah's servant, seeing in the distance a cloud about as big as a hand. Thank you, Malcolm, for that reminder!
For those who may not be familiar with the story, click here to read it in 1 Kings 18 (the "cloud as big as a hand" part is in verse 44...).
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posted by Eric Williamson @ 4:07 PM
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It's interesting that you would post this tonight. I could not sleep (tried to get to bed early) and started to think about Joelle and her wedding. I am so excited for her! Then, that made me think of the rest of you. I guess God wanted me to get up and read this post. ;)
I also started thinking about when I first "really" met you and your family (other than saying hello at church). I do not know if you remember, but it was at the Memorial Day Picnic about three years ago. Brendan and I were sitting next to you all under the big tree. I remember having so much fun talking with Cherie' and finally realizing that Connor and Joelle were her "children" and not her sister and brother. :) She impressed me by being able to ride a motorcycle. Ha Ha.
We are still praying for you all. We will not stop. When you have those bad days, please remember that. :) It may not always take away the anxiety and frustration you may have, but hopefully it helps some.
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