Day 100 - September 23 - Twists and Turns
Our hundredth day was marked by frustration, pain, sadness, a little bit of laughter, and blood. Connor worked on a computer for the first time since June, trying to learn to intricacies of controlling a mouse cursor with head movements. It was very hard work, but he tried and did well. Hopefully it won't be too long before he's typing on this blog his ownself!
The RTs found blood in Connor's trach today, and they don't know where it's coming from. It's not "bleeding" kind of blood, just a bit, but it's still disconcerting - especially when the response it generates is "well, we'd better watch that". I'd say so!
Tomorrow Connor has to have minor procedures to replace his trach and his stomach tube. They are doing this because he's finished with his treatment for MRSA (again), and apparently artificial stuff in the body is an attractant for bacteria, so they're going to put clean ones in, hoping that we can clear the boy from the infection and get him out of isolation. They will do cultures on Thursday and Friday, so early next week we'll know if we can take of the gowns and gloves. I don't know if that will be good or bad - isolation translates into "single room", whereas he may end up in a room with as many as four patients once he's cleared.
Of course, he will be back upstairs in the trauma unit for his surgery next week, so be praying about that as well.
Tomorrow 9/24/08 will be "T". You realize we're almost done? I hope you all are thinking about "X" coming up - it's not too far away! Anyway, Connor's T-word is "Teacher". Pretty interesting choice for the boy, in my opinion. I can't wait to see the working of what he's being taught in this...
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posted by Eric Williamson @ 9:17 PM
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23 Comments:
Thank you, God, for being our
STRONG TOWER.
TRUTH!
John 1:14 And the Word became flesh and dwelt among us, and we beheld His glory, the glory as of the only begotten of the Father, full of grace and truth.
John 8:31 Then Jesus said to those Jews who believed Him, "If you abide in My word, you are My disciples indeed. 32 And you shall know the truth, and the truth shall make you free."
John 14:6 Jesus said to him, "I am the way, the truth, and the life. No one comes to the Father except through Me.
John 14:15 "If you love Me, keep My commandments. 16 And I will pray the Father, and He will give you another Helper, that He may abide with you forever-- 17 the Spirit of truth, whom the world cannot receive, because it neither sees Him nor knows Him; but you know Him, for He dwells with you and will be in you.
John 17:14 I have given them Your word; and the world has hated them because they are not of the world, just as I am not of the world. 15 I do not pray that You should take them out of the world, but that You should keep them from the evil one. 16 They are not of the world, just as I am not of the world. 17 Sanctify them by Your truth. Your word is truth. 18 As You sent Me into the world, I also have sent them into the world. 19 And for their sakes I sanctify Myself, that they also may be sanctified by the truth. (all NKJV)
BTW, Eric - I'm ready for "X"!
This message is from anonymous Nancy to the Williamson family....and directly to Eric and Connor.
I do not talk in scriptures or God speak (like so many of your wonderful friends and acquaintances who follow the Lord). I talk to you just like I talk to God. Straight talk I call it. So first off know that I am continually praying for Connor's well-being. He reminds me of an angel.....his face is so sweet and lovely.....and handsome to boot. My 16 yr old adopted daughter thinks he is hot.
So I wake up during the night and think about your expectations and mine and what we should expect from God. It is on my mind constantly. To be honest I have long been frightened for you and Connor because I have felt you are asking for too much from God. I take a deep breath when I hear you speak and I think....Good grief he is going to make God really mad and then that Sins of the Father saying would come piling into my brain.
I read something today that brought you and Connor immediately to mind...and me too. The mystery author was saying...."Funny how tragedy brings some people closer to God while others push away. I figure its because one group doesn't expect as much from him as the other." Boy is that you and me in a nutshell. I expect little and you expect way so much more. Is that safe, I say? Is he right?? My way seems safer and yet I only asked God for my Meghan to live until she was 7. I thought that would be so much more bearable and never really believed he would heal her from this incurable disease. Meghan kept asking when she would become 61/2....not 7 just 61/2. I knew she was asking God to live that long. She was a little spitfire and I am certain she is still scolding God for taking her 21 days before she turned 61/2. How dare he not listen to her.
So I did ask for something and expected him to answer but I made sure it would not be asking too much. I didn't want him to say....so why does that Grandmother feel she deserves so much from me??
I ask for little and you ask for the moon....you ask for total recovery. I must admit when you called yourself a total idiot I felt you were finally on the right track. But as I read about Connor and your stubborn and relentless request for not some recovery but total recovery, my image of Connor has gone through a change. In my images and dreams I used to see Connor as he is today, but in the last few weeks I have seen him in one of those hot wheel chairs athletes use with him spinning himself on a basketball court. I know you are requesting more and at this moment in time, I am finding your stance more brave then foolish. I wonder if I will begin to see Connor running on the basketball court not sitting in a wheel chair. Connor's story is changing my former perception that we have no right to ask God for the moon and the stars....no right to expect more from God. Thank you Connor. I cannot wait to see what will happen to you next.
Our LORD is TENDER. He is a gentle loving GOD, full of mercies.
Praying for a good report concerning ALL of Connor's health.
LORD, keep Connor in the hollow of your hand - safe and protected. Up lift his Spirit and give him calming peace.
Good night and GOD bless you all.
~Shayne, Hollister
Terrific!
Our Trust.
This is a hard one.
That is great about Connor being able to use the computer. I cannot figure this thing out sometimes, and I have both hands! :)
Praying for you today!
TOTALLY Awesome! Truthful, Towering, Tender, Terrific!
He is our Transformer.
Thankfully He is still transforming me.
God is TRUSTWORTHY
Psalms 111:7
"The works of His Hands are faithful & just; all His precepts are trustworthy."
Psalms 19:7
"The law of the Lord is perfect, reviving the soul. The statutes of the Lord are trustworthy, making wise the simple."
Continuing to pray for restoration & healing for Connor & the family.
Have a Blessed Day,
KC, MH
Love the new pic! You go Connor!
Praise the Lord!
First I must say that I love the new picture of Connor with his BIG smile! What a joy it is to see his courage and faith in God in the midst of this difficult journey that he is traveling.
Just a comment to "Anonymous Nancy" -- Even though you don't use scriptural quotes or do "God Speak" as you put it, you speak from the heart and I have no doubt that you are very close to God and that you most certainly have His attention. I am blessed by your heartfelt comments as well as Eric's profound honesty and courageous appeals to our Lord. You are both a lot like "Job" in the midst of daily trials and that isn't such bad company to be in, in light of the fact that God considered Job a "model" servant.
"TRINITY"
OUR FATHER, SON & HOLY SPIRIT
CAROLYN BROGAN
He is Truth.
Love the new photo of Connor, btw!
Hey guys - just got up to date on the photos - hadn't looked at them in a while. Smiles abound!! You may not be where you want to be, but I still see the same wonderfully close family I ALWAYS see with you. Thinking of you always. Lisa S.
"Thankful" describes how we feel about God, His Son, and the Spirit. He is doing so much in your lives every day--always in His time and not ours but, like Nancy said, I am looking forward to what He still has in store. Even when His ways are not our ways, we know He is Supreme. I will be praying that the bleeding stops and that the tubes being changed goes well, too.
EEEWWWWW!!!! I'm so upset with myself! I just finished writing a long post to you, and went to "preview" it first, then hit "publish" and lost everything.
Lets see if I can remember everything. First, I wanted to say that my "T" word for today is "Thoughtful!" God has Connor and your family on His mind at all times, caring for you, understanding how you feel, "thinking" of you constantly, and loving you!
And thanks for the new pictures! Connor looks like he's come a long ways. And he is very handsome! Also Eric, you have the most beautiful wife! And your daughter looks like Cherie and you too. And she looks like she has a good sense of humor. I'm sure that is just what Connor needs.
And I just wanted to comment on what some are saying about how we pray. I personally believe that "there is NOTHING too big we can ask God for!" That's exactly what the Lord wants us to do.
He wants us to have such a close relationship with Him that we can come to Him with anything. And to have such faith, to know that He can accomplish something so big as healing someone.
When Jesus was here, people were constantly asking Him to heal them or their loved ones. Why would or should it be any different today?
I find all kinds of verses through the Bible about how to pray. One of my favorite is in Luke 11:1-13. It's too long to write out, but it talks about how the disciples asked Jesus how to pray, and He gave them a story to follow.
It talks about a person that goes to a friends house at midnight banging on the door and asking his friend to give him 3 loaves of bread for a friend that just arrived on a long journey. The man inside yelled out and said to go away, he and is family were in bed. The man kept pounding on the door and "pleading" for his friend to come out with the bread. Finally, the friend got up and gave his friend all he needed.
I just love that passage!! That's how the Lord wants us to come to Him. He wants us to come to Him with our "Hearts desires" (there's verses for that too), and ask, cry out, plead, for whatever is on our heart. Especially, to have the Lord heal our child.
Just like Job, in the old testament, he fasted and prayed for days for his son to be healed, "Pleading" with God. The Lord decided to answer his prayer differently, and did not heal his son, for whatever reason, and Job got up, cleaned up, and went in to eat. He accepted how the Lord answered, he didn't loose his faith, he didn't understand, but he accepted it.
I know that's how God wants us to be. He wants us to poor our hearts out to Him. Read that scripture in Luke. I bet you have already, but there's so many others too!
Anyway, I just wanted to really encourage all of you, that nothing is too big for our God. And He wants and tells us to come to Him in these ways.
We continue to pray for complete physical restoration for Connor. And we pray that this will bring all of you so much closer to the Lord. Sometimes, trials are what cause us to grow closer to the Lord.
With love in Christ!
Kim
Yes, the picture is really great - it was so cool to pull up the website and see his smile today.
God is totally trustworthy even in hard times - that has come across to me more and more in recent years.
Thanks again for this exercise. I don't always get the time to post but still pray daily for you all.
My son says "Terrific" and I say "Teacher"!
Hello Williamsons!!! Mom and I enjoyed our visit yesterday. There were many exciting things that happened. T he most important was my Doctor visit. To lay some groundwork, he is a wonderful man and my inpatient rehab doctor. I respect him highly. When I pressed him on a possible prognosis, he told me I would never walk again. You and I both know that doctors read our records as scientists, so to hear this I was amazed because He said never. Fast forward 4.5 years He said I am now an ASIA C. An ASIA score is a measure of function after spinal cord injury; used by physicians. "A" means complete injury; "E" means complete injury. I wanted to share with you, to encourage your belief, faith, and hope.
God is faithful to give you what you ask for!! The new wheels I was showing you took 3 years of asking and praying and basically not taking no. Medi-Cal does not cover them. So, keep asking God for what you need and then believe it is going to happen.
You must stay active spiritually, emotionally, and physically. Connor what joy that must have been to get back towhat was once a daily activity. Are computers not the best!! I am looking forward to seeing your thoughts. Did you see, "Finding Nemo"? What an amazing film about persistance. Remember Dorie's (spelling?) famouse line? "Just keep swimming, just keep swimming..." That is what we must do. We must keep moving what we can move. Tomorrow may not be the big "walking" day but what about the next.
I have no doubts that you are where you need to be. Mom and I prayed you would get Stephanie. She is so amazing and an encourager. You are in tremendous hands.
We are praying for your complete restoration because we know the great physician.
Many hugs!
Jessica and Martha Runnels
Just a few songs that get me through rough days!
Gaither Vocal Band-Keep Believing
http://www.youtube.com/watch?v=z6OSW_kkAts
Crystal Lewis-My Redeemer Lives
http://www.youtube.com/watch?v=UQsNASacqig
4 Him-Where there is Faith
http://www.youtube.com/watch?v=iE0Dh-cogcU
Just noticed a typo...ASIA "E" is complete recovery.
TREMENDOUS !!!!!!!!!!!!
ps...awesome photos !!!
xxxooo, Fuzzy
God is "Trustworthy"
Dear Williamson Family,
Thank you for the new pictures - how wonderful to see you Connor outside and smiling!
We continue to check the blog daily and stop to pray for you all often throughout the day.
The Zappa's
Gilroy
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