Day 68 - August 22 - Another door closed
We just got the word that our insurance will not cover the facility in Saratoga. They are telling us he needs a facility called an LTAC, which stands for Long Term Acute Care. The facility in Sacramento (actually Fulsom), a place called Kindred Hospital, is the one that thinks they can wean Connor from the ventilator in 30 days and they had a bed as of three days ago. The insurance is also willing to cover an LTAC attached to a Kindred hospital in San Leandro, which is in the East SF Bay south of Oakland.
I don't know anything about either of these places, except what I can read on their own websites, which is a bit biased. I don't know if there are any places nearby to park RVs, I don't know anything, and yet I'm being forced to choose between them.
San Leandro Pros - Closer to home - 60 miles or so. Closer to work.
San Leandro Cons - Closer to Oakland. 99 bed hospital-y looking. East Bay means massive traffic issues most of the time, so 60 miles may be more like 1+20 driving from MoHill. Crowded area means less potential for RV parking?
Fulsom Pros - Nicer area. Only 39 bed facility - still hospital-y, though. Confident they can wean the boy from the vent in 30 days.
Fulsom Cons - 2+30 driving time (or more) from home - even further than Fresno.
Anybody out there know anything about these two facilities?
Please pray for us. We see an open door, and begin to walk through it, and it gets slammed in our faces. This is the second time in a week. The insurance wants to move him right this minute and doesn't want to pay for more hospital time, and since the Fulsom facility has said they're ready for him, insurance wants to move him ASAP. God has not given me any peace about any course of action in over 68 days, and I have none over this entire situation. I'm pretty much peace-less about everything, and yet everybody is standing around expecting us to make effective decisions. But as soon as we try to make a decision and act, that action gets slammed shut.
If anybody knows specifics about these two facilities, please contact me via the Contact Page on the website.
Who's in control again? It certainly isn't me...
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posted by Eric Williamson @ 12:49 PM
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6 Comments:
I'm sure I join others with you in feeling helpless in this situation. I wish I had answers or words to help. Sometimes it seems like each passing day is getting more difficult. We want resolution and yet it isn't happening. Please just know we are praying with you for guidance in your decision and peace for all of you.
-MH family
We have been praying all day and checking the website. Jesus, give clarity and peace; we pray Connor will get to the place best for him.
Love you guys,
Kristie and Wade
Eric,
If at all possible, make a quick trip to these two facilities.
Stand firm with the insurance people that you must see these places before you can commit yourself on either one of them.
Also, check out the two hospitals' family support services. Ask them if there are nearby RV parking spaces, or rooms to rent for reasonable rates on long-term basis. See if there are transportation services the hospital provides. Evaluate services not only for Conner but also for his family.
Good luck, stay positive and stay strong!
You and your family are in our prayers.
MT
C'ville
There are 2 possible RV campgrounds in San Leandro. I have no idea about them but thought I'd check for ya. Sandev MH Park Campground (510)352-1334. Trailer Haven Campground (7 min. or so to hospital) (510)357-3235.
We are believing with you that the facility you chose will be best for Conner.
Hi Williamson's,
I will be praying that His will would become very clear to you, as to where is the best place for Connor. I will be in the East Bay tomorrow for my cousin Clark's memorial service who was killed in a car accident 10 days ago. The service isn't until 4p.m. If nothing else I will drive by and pray. I will be keeping these decisions in constant prayer!
Trusting God,
Krista Lewis
This is Emily Adorjan, formerly Burns (Dave and Cindy Burns' daughter). I live right near Folsom and just graduated from college and am a respiratory therapist in the area. I have had patients go to Kindred in the past. I have heard good and bad things about the facilty. One patient that we had a hard timing weaning from the vent was off of the ventilator in about a week and is doing great. Another patient hated the place. She is a very anxious women so my understanding of the situation is that there was lack of communication and she wanted one on one care which, because they are not an ICU, they couldn't provide. I think that Connor would do well if you are there with him. I don't know if I could help any but am willing if you would like. I read a little about his oxygen status but don't know much about his ventilation (meaning what ventilator mode he is on and how much support is he getting). So in that, I don't know how weanable he is at the moment but if kindred said they could wean him, then I would think about giving them a try. I will continue to be praying for him and your family. If you would like my help email me at emilyanne83@hotmail.com. God bless!
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