Day 35 - July 20 - Good mood
After my post this morning, we loaded up the car and headed off to church. We were lifted and blessed there, then came back to the hospital to see the boy and relieve Granny from her self-imposed vigil in Connor's room. When we got there, our nurse stopped us on the way in to tell us what a great mood Connor had been in all morning. We watched her interact with the boy, lifting his spirits and encouraging him. She had even chosen and worn brightly colored clothes to cheer the boy and lift his spirits. It was fantastic to see such a professional fill her job with such genuine compassion. She was great with him! Thanks, Lord, for giving the boy such great caregivers. That is certainly an answer to prayer.
Connor had a great night, with no incidents with his heart whatsoever. His lungs seem to be responding to the bed, and the RT has seen steady improvement in the state of his lungs and blood gases. He rested well and awoke cheery and in a good mood. His numbers remain good, and the therapists are slowly lowering the O2 percentage as his lungs improve. He's currently at 60%.
He has developed one minor complication that the nurses are addressing. Because of the movement of the beds over the last few weeks, his trach has developed a tear caused by the trach tube rubbing against one side of the trach. They are taking care of it now, but it's still a complication as well as a point of introduction for infection. Please add that to my (seemingly never-ending) list of prayer requests to lift up!
Finally, an interesting blessing. I was speaking with Connor about the bed, and I told him I was sorry he had to be back on the rotisserie. His response? "This bed is more comfortable than the regular bed".
Say what? Turns out he likes being flat on his back, even on the Tilt-o-Bed, more than he likes being propped up in the regular bed.
He'd better not get used to it!

4 Comments:
What an awesome day, I guess it's true what we said last night, Blessings come with Obedience also the Lord won't give more than we can handle so there ya have it just a beautiful day full of smiles,comfort, good care givers,loving Grandmas and a patient that is being rocked in the arms of a Glorious Savior! Keep on reaching, hands, it just feels good:)
Praying in Downey
Me again, I just read one of my devotions for this morning, I wanted to share it with you, enjoy
This week's promise: Our prayers bring us into God's presence
What can I learn from Nehemiah?
When I heard [how things were going in Jerusalem], I sat down and wept. In fact, for days I mourned, fasted, and prayed to the God of heaven. Then I said, "O Lord, God of heaven, the great and awesome God who keeps his covenant of unfailing love with those who love him and obey his c ommands, listen to my prayer! Look down and see me praying night and day for your people Israel.
Nehemiah 1:4-6 NLT
The king asked, "Well, how can I help you?"
With a prayer to the God of heaven, I replied, "If it please Your majesty and if you are pleased with me, send me to Judah to rebuild the city when my ancestors are buried."
Nehemiah 2:4-5 NLT
Nehemiah's example
With little time to think, Nehemiah prayed to God. Eight times in this book we read that he offered a spontaneous prayer. Nehemiah prayed at any time, even while talking with others. He knew that God is always present, always in charge, always listening, and always ready to answer.
Nehemiah could confidently pray to God throughout the day because he had established an intimate relationship with him during times of extended prayer. If we want to be confident about our brief prayers, we need to take time to cultivate a strong relationship with God through times of in-depth prayer.
God is so Good, Amen!
I'm praying for you guys...I can't imagine what you all are going through. Connor seems like an outstanding young man and so courageous! His and the rest of your family's faith is inspiring...
Noel "Shad" Keene
I so glad you hear the bed is doing what it is supposed to do. I know you don't like Connor on the bed, but I am thanking God that they have the bed available to put Connor on. Could you imagine what would happen to his lungs without it?
I'll continue to pray for full function of his lungs and heart.
Mary Casillas - Hollister.
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