Wednesday, July 16, 2008

Day 31 - July 16 - A lot going on...

Wow, much is happening around here! We got the call from Brad while we were watching the 15th inning of the All-Stars game with Connor - as we waited for the staff to move Connor to his new bed!!! We found out last evening that they were moving him off of the rotating bed, and I haven't seen a grin that big on the boy's face in the month we've been here. Even missing the final play at the plate because of the move wasn't enough to dim that smile! What a blessing to finally get back into a normal bed (it's funny what I consider a "blessing" now, isn't it?). The three of us prayed for the Michigan boys, and every other person we considered at risk, until the staff arrived to switch to the new bed.

So Connor is firmly ensconced in a regular hospital bed, and I'm sure as soon as he wakes up he'll be propped up in it watching TV (for more than every other five minutes, too!), but what a great answer to prayer. We are now praying that God would continue to improve and sustain the boy's lung function effectively to the degree necessary to keep him safely out of any more rotating beds, ever.

Y'all saw Cherié's post with all that was going on yesterday - pretty cool, eh? I wanted to make sure everybody understands where we are so our prayers stay effective, so please forgive me while I reiterate the current condition. Connor remains paralyzed below the neck - he is beginning to feel some bodily sensations, some of which are unpleasant, but has not yet begun to move again or regain high degrees of sensation. One nurse thought she felt his leg move yesterday afternoon, and Connor told us he felt his right hand twitch as well. Additionally, he does not yet have autonomic control of his lungs. During a brief period of time yesterday without the respirator, he was able to make some significant lung action, although I can't tell you how effective or ineffective it was, as I didn't see it. But he did have some response to it, which I take as a good sign.
All in all, much to pray for, although we're hopeful and patiently (OK, maybe not so patiently) waiting for God's timing and healing. The nurse last night warned us that they would now begin lowering the boy's sedation meds with the goal of getting him off the respirator and out of ICU, which will be a difficult and frustrating process for Connor, so please continue to lift him up.

On the home front, I managed to get the RV to Fresno, and I am even now sitting in my new office (out under the awning because I can't get the wireless network inside the tenement). a HUGE "thank you" to my friends David J. and his family for the radiator and for getting the rig up to Campbell, and to Jeff S. and the crew at Tires Unlimited for the installation labor - and particularly to "the makers of WD-40 and one old Okie mechanic who doesn't know when to stop" (Jeff's words) who patiently worked on the frozen thermostat housing until he successfully removed it. The new thermostat and radiator meant that on my drive to Fresno, during the heat of the day, the RV's temperature never went above "M" in "NORMAL" during the entire trip - up the grade, and down the valley with the AC running full blast. I cannot begin to thank you guys enough.

Finally, just because I mention those two guys specifically does not mean we do not appreciate every single one of you for your contributions, your prayers, and your words of encouragement. We simply would never have the time to acknowledge the enormous outpouring of generosity toward us which the Lord is providing through you all. Yesterday afternoon, Cherié and I sat weeping and pouring out our thanks to the Lord for His daily provision to us through this all, and He is using your hands and hearts to show us that. Thank you, thank you, thank you.

Today marks one month in the ICU. May God quickly grant us release from it.

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7 Comments:

At July 16, 2008 8:43 AM , Anonymous JD+1 said...

Isaiah 41:9-10

"...I have chosen you and have not rejected you. So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."

xxxooo,

JD+1

 
At July 16, 2008 8:49 AM , Blogger Melissa said...

Praise the Lord for all the good news this morning!! How wonderful for Connor to be able to be in a normal bed!

The RV looks quite cozy too. I can see you now Eric, under the awening, typing away.

Sending lots of love your way, and prayers to our Heavenly Father.

 
At July 16, 2008 9:25 AM , Anonymous Anonymous said...

I was choked up to see Connor in his new bed, and to see the beautiful RV setup God has provided through the quick and dedicated hands of his earthly angels!

It is so wonderful to see how he answers our prayers!!

Much love to Connor, and keep on twitchin'!!!

 
At July 16, 2008 11:06 AM , Anonymous jenann said...

"Ditto" what JD+1 said up there. Great verse!

I'm thanking God right now for every little sensation that Connor is feeling (pleasant and unpleasant). I'll be praying that as they wean him off the sedatives, any pain he feels won't be overwhelming. I imagine it might be like a limb that's gone to sleep and feels like pins and needles when it starts to wake up...only over his whole body. I'll also be praying for more twitches!

Most of all, I'm praying for Connor's lungs to regain full function so he can breathe on his own. We take so much for granted when our bodies are healthy. We don't even think what it might be like to not be able to breathe without assistance. Thinking about it now, it makes me feel claustrophobic and I just want to get up and move. I pray Connor's mind will be filled with good things, staying fixed on Jesus, concentrating on what he *can* do right now and any growing sensations he's feeling.

Finally, I continue to pray for you all (Eric, Cherie, Joelle), that you'll get the rest you need so you can minister to Connor effectively.

Love you guys,

Jenann

 
At July 16, 2008 11:08 AM , Anonymous Anonymous said...

We are so happy Connor was able to move to a normal bed. God is so GOOD and FAITHFUL!!! I thank God for your wonderful friends that are there to bless you and encourage your family. We pray and (try) and wait patiently for God's complete healing over Connor's body and peace over his mind. We continue to lift your family... Eric, Connor, Cherie, and Joelle in our prayers daily. May you be blessed, refreshed , renewed, and strengthen today.
Praying for you Daily.

 
At July 16, 2008 12:20 PM , Anonymous Evalena said...

Reading this MADE ME TWITCH as well! Awesome to see Conner in such a relaxed state...PRAISE GOD! The RV is not as cute as Conner, but it is still PRETTY TO SEE! Congratuations on your home-away-from-home; I know that has to help.

Love you all!
Evalena

 
At July 16, 2008 12:28 PM , Anonymous Anonymous said...

1 month.....strange how I am sure it feels like 1 day and 1 year..all at the same time. I have never walked and watched a day by day journey of faith and hope,like this. I feel privileged to have witnessed the never ending miracles of God. When I go back and see how it all began, and where Connor is now...I only see Gods love and mercy. Connor IS in his hands...always has been...always will be.

 

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